"Love, Loss & Life": Real Stories F

Your feedback means a great deal to us. Please text us your thoughts by clicking on this link. Krishen Samuel, born in Johannesburg, South Africa in 1986, studied Speech-Language Pathology in Cape Town before pursuing a Master’s degree in Global Health, Public Health and Policy in London.   Despite being born after the AIDS pandemic began, he grew up in a country with some of the highest HIV infection rates in the world. Since being diagnosed with HIV in 2009, he has been driven to share his experience and ensure that the events of the 80s and 90s are not forgotten.  He has written for The Huffington Post UK on HIV/AIDS and LGBTQ issues and is currently doing his PhD in Public Health on a Fulbright scholarship in the US.  This podcast series features stories taken from our first book, a collection of essays, reflections, and testimonies also entitled ‘Love, Loss & Life’ which you can buy here. An audiobook is also available here. Visit the National HIV Story Trust website

Your feedback means a great deal to us. Please text us your thoughts by clicking on this link. Richard Leaf, an English writer, pursued his education in San Francisco and then embarked on a career in theatre. His journey led him to the Royal Shakespeare Company and appearances in notable films such as Braveheart, Hannibal Rising, The Fifth Element, and Harry Potter and The Order of The Phoenix.  In the early 80s, he bore witness to the challenges of the AIDS pandemic in San Francisco, and in the 1990s, he devoted himself to volunteering at the Mildmay Hospice, an experience that left an indelible mark on his heart. He says the shared struggles of having HIV/AIDS fostered generosity and encouragement between individuals at the Mildmay hospice.  Their shared experience of facing a terminal illness and stigma brought them together to support each other through difficult times, which Richard Leaf admires as an embodiment of unconditional love. This podcast series features stories taken from our first book, a collection of essays, reflections, and testimonies also entitled ‘Love, Loss & Life’ which you can buy here. An audiobook is also available here. Visit the National HIV Story Trust website

Your feedback means a great deal to us. Please text us your thoughts by clicking on this link. Dr. Graeme Moyle graduated from medical school in Adelaide, Australia in 1986. His interest in infectious diseases led him to the UK in 1988 to specialise in HIV medicine and research. Much of his career has been associated with the Kobler Clinic in London, part of Chelsea and Westminster Hospital.  In 1996, new classes of medications were found to suppress the virus, leading to dramatic changes in individuals’ health, quality of life, and life expectancy. This podcast looks at the progress in treatment and drug development from the clinician’s viewpoint. This podcast series features stories taken from our first book, a collection of essays, reflections, and testimonies also entitled ‘Love, Loss & Life’ which you can buy here. An audiobook is also available here. Visit the National HIV Story Trust website

David Eason's selfless commitment to volunteering at London Lighthouse, providing care for individuals affected by AIDS, exemplifies his unwavering dedication to making a difference.     Collaborating with friends, he spearheaded initiatives such as the "Warriors" club-night, aimed at empowering those living with the illness to lead more fulfilling lives. It was while in the United States that David was first exposed to the devastating impact of a new disease affecting the gay community. Throughout the AIDS pandemic, he maintained close ties with friends in the US and also witnessed the profound effects of the disease in the UK, where both he and his partner were affected.   The poignant account of the loss of his partner serves as a reminder of the profound impact of AIDS, and David's subsequent contributions promise to offer valuable insights into this critical issue. Enjoying the podcast series? Please let us know by clicking on this link. We love it when these important stories get heard. This podcast series features stories taken from our first book, a collection of essays, reflections, and testimonies also entitled ‘Love, Loss & Life’ which you can buy here. An audiobook is also available here. Visit the National HIV Story Trust website

Andrew Keates grew up in Dorset and realized he was gay at 13. He loves the theater and is now an award-winning director. Some of his productions have been performed in the West End, including 'As Is', 'Dessa Rose', and 'Dark Sublime'. In 2018, he received the 'Young Achiever of the Year Award' for his success in theater and his work raising awareness about HIV and under-represented communities. Andrew felt let down by the lack of education about HIV and the absence of gay role models when he was young. In 2013, he directed a revival of 'As Is' to honour those lost to the AIDS pandemic and raise awareness about HIV. He made a pact with his cast and crew to get tested for HIV. At the end of the production, he found out he was HIV positive. Enjoying the podcast series? Please let us know by clicking on this link. We love it when these important stories get heard. This podcast series features stories taken from our first book, a collection of essays, reflections, and testimonies also entitled ‘Love, Loss & Life’ which you can buy here. An audiobook is also available here. Visit the National HIV Story Trust website

Dr. Rupert Whitaker is a remarkable individual who has shown extraordinary resilience as one of the longest survivors of HIV. He has been a strong advocate for people with HIV and other long-term illnesses for over 40 years.  Disability, mental illness, and age-related issues persist for many living with HIV, despite medication advances. Dr. Whitaker believes that the LGBTQ+ community should take action to improve support and healthcare for those in need, emphasising that it should focus on the long-term effects of HIV on mental and physical health, including housing and care for older people. He helped start the Terrence Higgins Trust to honor his late partner and is now an expert in mental health and public health. In 2021, he received an honorary Doctor of Science degree for his medical work and patient advocacy. In 2022, he was given an OBE for his charity work and public health service. Enjoying the podcast series? Please let us know by clicking on this link. We love it when these important stories get heard. This podcast series features stories taken from our first book, a collection of essays, reflections, and testimonies also entitled ‘Love, Loss & Life’ which you can buy here. An audiobook is also available here. Visit the National HIV Story Trust website

Acclaimed actor and national treasure Rupert Everett describes the excitement of his youth when he first encountered the gay scene in London.  Rupert Everett's full story can be found in the NHST archive, but in this story he reveals his deepest fears as he became aware of a stalking "vampire" haunting the gay bars and clubs in the US and UK, and tells how AIDS was a 'time-bomb waiting to explode'. This podcast series features stories taken from our first book, a collection of essays, reflections, and testimonies also entitled ‘Love, Loss & Life’ which you can buy here. An audiobook is also available here. Visit the National HIV Story Trust website

Blackliners grew out of a realisation that there were no organisations dealing with HIV that catered specifically for the black community, with the result that many HIV+ black people in the UK felt side-lined. Arnold describes the role the charity played in raising awareness and supporting the black community in various ways. This podcast series features stories taken from our first book, a collection of essays, reflections, and testimonies also entitled ‘Love, Loss & Life’ which you can buy here. An audiobook is also available here. Visit the National HIV Story Trust website

As Minister of Health in the mid-1980s, Lord Fowler found himself at odds with Margaret Thatcher and other members of the Cabinet over how much attention should be paid to the AIDS pandemic. Some neat political manoeuvring enabled him to run a memorable public health campaign which made the nation aware that HIV and AIDS could affect anyone. This podcast series features stories taken from our first book, a collection of essays, reflections, and testimonies also entitled ‘Love, Loss & Life’ which you can buy here. An audiobook is also available here. Visit the National HIV Story Trust website

Barbara von Barsewisch trained as a nurse in London in the early 1990s and worked on Broderip Ward, the HIV ward at the Middlesex Hospital, for ten years. She went on to work at the Chelsea and Westminster Hospital in the Kobler Day Care Unit, where she developed an expertise in caring for patients with AIDS-related cancers, especially lymphomas. Caring for patients with AIDS in the 1990s was a nursing experience unlike any other. It was a time when the rule book went out of the window and some extraordinary and moving interactions between nursing staff and patients helped to ease the passing of many of the people in Barbara’s care. This podcast series features stories taken from our first book, a collection of essays, reflections, and testimonies also entitled ‘Love, Loss & Life’ which you can buy here. An audiobook is also available here. Visit the National HIV Story Trust website

Actor Jonathan Blake describes the excitement of his youth when he first encountererd the gay scene in London and San Francisco. His story is both delicious and dangerous and life was joyful. He tells how he had to rally against ‘a terrifying disease’ and the world stopped. Jonathan reveals how the impact changed his behaviours, but his humour and exuberant love of life continues. This podcast series features stories taken from our first book, a collection of essays, reflections, and testimonies also entitled ‘Love, Loss & Life’ which you can buy here. An audiobook is also available here. Visit the National HIV Story Trust website

As a young woman, Winnie only gradually became aware of the word Slim, as AIDS was called in Africa, which was devastating communities in Uganda in the 1980s. When she was diagnosed HIV positive, she believed she was under a death sentence until she came to the UK and found both support and effective treatment. Her mission ever since has been to convince others that HIV need not be a barrier to living a full and fulfilling life. This podcast is a short extract taken from the audiobook 'Love, Loss & Life': Real Stories from the AIDS Pandemic published by the National HIV Story Trust. It is available to buy on most audiobook platforms. Buy audiobook on apple books Buy audiobook on google store Buy audiobook on audiobooks.co.uk Visit the National HIV Story Trust website

In the early years of the AIDS pandemic, the focus was on the physical needs of people with the illness. But by the 1990s it was becoming clear that people with AIDS could also become acutely psychiatrically unwell, often as a result of the illness attacking the brain, and that the NHS didn’t have the facilities to cope with this aspect of the condition. Flick Thorley recalls the pioneering work she was involved with at that time which helped remedy the situation, and the care given by the London Lighthouse. This podcast is a short extract taken from the audiobook 'Love, Loss & Life': Real Stories from the AIDS Pandemic published by the National HIV Story Trust. It is available to buy on most audiobook platforms. Buy audiobook on apple books Buy audiobook on google store Buy audiobook on audiobooks.co.uk Visit the National HIV Story Trust website

“It was profoundly moving that a bunch of people, pilloried by society and told that AIDS was their own fault, were utterly non-judgmental themselves.” When Kelly Hunter’s close friends in the theatre began dying of AIDS related illness, she put her career on hold for two years to volunteer with the Terrence Higgins Trust. She used her theatrical contacts to raise money for AIDS charities and was the driving force behind some of the most memorable fundraising initiatives of the late 1980s. This podcast is a short extract taken from the audiobook 'Love, Loss & Life': Real Stories from the AIDS Pandemic published by the National HIV Story Trust. It is available to buy on most audiobook platforms. Buy audiobook on apple books Buy audiobook on google store Buy audiobook on audiobooks.co.uk Visit the National HIV Story Trust website

Jane Bruton began her nursing career in Leicester and first encountered HIV patients when she became Ward Sister in the infectious diseases unit there. After a short spell as a health advisor in the Sexual Health Clinic at the Chelsea and Westminster Hospital, in 1989 she became Sister on Broderip Ward, the dedicated HIV ward at the Middlesex Hospital.  Jane returned to the Chelsea and Westminster in 1999 for a further 14 years in various Senior Nurse roles in HIV.  She has also worked with HIV patients in rural Uganda, and she is now the Clinical Research Manager in the Patient Experience Research Centre at Imperial College, London. This podcast is a short extract taken from the audiobook 'Love, Loss & Life': Real Stories from the AIDS Pandemic published by the National HIV Story Trust. It is available to buy on most audiobook platforms. Buy audiobook on apple books Buy audiobook on google store Buy audiobook on audiobooks.co.uk Visit the National HIV Story Trust website

This podcast represents just one example of many stories from the full form Audiobook "Love, Loss & Life" published by the National HIV Story Trust.  Alan Burgess was diagnosed as a child in 1967 with a moderate form of haemophilia. A painter and decorator by trade, he was married with children in the 1980s when he was given NHS contaminated blood products and became infected with HIV, eventually losing his business and much else besides. He joined the Birchgrove Support Group, a campaigning group set up by haemophiliacs with HIV, and has given evidence to the Infected Blood Inquiry which got underway in 2018. 

This podcast represents just one example of many stories from the full form Audiobook "Love, Loss & Life" published by the National HIV Story Trust.  Although her partner died of AIDS-related illness in 1998, Adrienne was not diagnosed herself until four years later, by which time she had a viral load of over 2 million. She found being a woman with HIV a lonely experience at first, and hid her status from her son for many years. 

This podcast represents just two examples of many stories from the full form Audiobook "Love, Loss & Life" published by the National HIV Story Trust.  After studying International Relations at Keele University, Sir Nick Partridge was living in Amsterdam when news of an illness affecting gay men in America started to percolate through to Europe. He returned to England, volunteered for Gay Switchboard, and then in 1985 secured a job as office administrator with the Terrence Higgins Trust (THT), the first charity in the UK to be set up in response to the AIDS pandemic. He went on to become its Chief Executive from 1991 to 2013. Honoured with an OBE in 1999 for his services to charity and knighted in 2009, he was named by the Independent in 2010 as one of the top 100 most influential gay and lesbian people in Britain.  Having graduated with a degree in social sciences and having qualified in social work in 1981, Janet Green was a volunteer on London Lesbian Line before starting at the Terrence Higgins Trust at the same time as Nick Partridge, sharing an office with him as the charity’s first two paid employees. In her role as Counselling Co-ordinator, she was for the next eight years instrumental in setting up many of the charity’s counselling and befriending initiatives. Afterwards, she continued to specialise in HIV as a local authority social worker, later working more generally in disability services, until her retirement in 2007. From their different perspectives, Nick and Janet look back at the early years of the Terrence Higgins Trust and the support it offered to those with HIV and AIDS. 

'Love, Loss & Life' Real Stories from the AIDS Pandemic: Rebecca de Havilland

This podcast represents just one example of many stories from the full form Audiobook "Love, Loss & Life" published by the National HIV Story Trust. George Hodson can legitimately claim to have been there at ‘Ground Zero’, living in San Francisco when the very first cases of HIV/AIDS began to appear among the gay community in America in the early 1980s. Diagnosed with AIDS himself a decade later, when there was still no effective treatment for the virus, he has somehow survived through several different cancers and a heart bypass operation into his seventies, but watched his lover, his friends and his fellow patients in the London Lighthouse dying of AIDS related illnesses.