Schizophrenia Community Radio

Angela Geddes is the Assessment Coordinator at the FASD London Region Assessment Clinic, http://www.fasd-londonregion.com/. Darlene --. is an Early Childhood Educator and Homeschooling Mom of two who’s worked with children for the past 24 years in formal and home childcare settings. They talk about their lives, careers, experience with FASD children, work and responsibilities. They highlight the challenges that FASD creates for children, for their families and their family caregivers, and for the providers of social and healthcare services. They identify what they see as the most important needs and services for helping meet the challenges created for children living with FASD, for the families and family caregivers, and for providers of healthcare and social services. They say what more they would like to do and see done to improve services for FASD children, their families and their family caregivers.

Marni Soupcoff, a lawyer, is a newspaper columnist and Executive Director of the Canadian Constitution Foundation, and previously served the Institute for Justice. She describes her work and experience with family caregiving. She explains autonomy and highlights the challenges it creates for families and family caregivers caring for family members with mental illness or brain damage who may be unable to make decisions in their own best interests. She discusses the challenges created for privacy and social justice laws and for medical practice by autonomy when its lore is applied to individuals living with mental illness or brain damage. She says what more she would like to do and see done to advance understanding of autonomy’s implications for individuals, their families and family caregivers. She shares her message for family caregivers without substitute decision-maker who encounter difficulties getting their alerts listened to by psychiatrists and other healthcare professionals.

Dr. Gordon Atherley, docg@familycaregiversunite.org, holds the British equivalents of the North American MD and PhD degrees, and LLD, Honoris Causa. He highlights his own experience of bullying within a Canadian organization focused on mental illness. The bullying caused harm and loss to many people who were associated with the organization, who depended on it, or who trusted it. He believes that the bullying reflected Narcissistic personality disorder, as defined by various expert organizations. He analyzes his own experience of being bullied by a healthcare professional and says why he advocates for high-quality research. He details challenges created for family caregivers and their family members, and the supports that they need. He says what more he’d like to do and see done, and by whom, to promote prevention of bullying by healthcare professionals and support for people who are bullied. He shares his message for people who have been bullied by healthcare professionals.

Dr. Gordon Atherley, docg@familycaregiversunite.org, holds the British equivalents of the North American MD and PhD degrees, and LLD, Honoris Causa. He highlights his own experience of bullying within a Canadian organization focused on mental illness. The bullying caused harm and loss to many people who were associated with the organization, who depended on it, or who trusted it. He believes that the bullying reflected Narcissistic personality disorder, as defined by various expert organizations. He analyzes his own experience of being bullied by a healthcare professional and says why he advocates for high-quality research. He details challenges created for family caregivers and their family members, and the supports that they need. He says what more he’d like to do and see done, and by whom, to promote prevention of bullying by healthcare professionals and support for people who are bullied. He shares his message for people who have been bullied by healthcare professionals.

As Chief Advocate at K&A Inc., http://kealeyandassociates.com/, Marc Kealey is a leading voice for transformation in health care. He talks about his family, the experience of being bullied, the ways the bullying occurred, and its effects on his family. He says as much as he can about the apparent motives of the bullies. He discusses bullying, especially as it affects families, in healthcare, politics, and internet safety, sectors in which he has wide professional experience. For these sectors he explains what needs to be done to counter bullying that does or could occur, especially as it does or could affect families. He says what more he would like to do and to see done and by whom to counter bullying and its effects on families that do or could occur in healthcare. He comments on the helpfulness of VoiceAmerica`s talk show Family Caregivers Unite for people who have experienced bullying.

As Chief Advocate at K&A Inc., http://kealeyandassociates.com/, Marc Kealey is a leading voice for transformation in health care. He talks about his family, the experience of being bullied, the ways the bullying occurred, and its effects on his family. He says as much as he can about the apparent motives of the bullies. He discusses bullying, especially as it affects families, in healthcare, politics, and internet safety, sectors in which he has wide professional experience. For these sectors he explains what needs to be done to counter bullying that does or could occur, especially as it does or could affect families. He says what more he would like to do and to see done and by whom to counter bullying and its effects on families that do or could occur in healthcare. He comments on the helpfulness of VoiceAmerica`s talk show Family Caregivers Unite for people who have experienced bullying.

Craig Lewis is a Certified Peer Specialist living in Massachusetts, http://www.betterdaysrecovery.com/. He’s struggled immensely throughout his life, but he’s successfully transformed it into a life of wellness. He talks about his life, career as author of ‘Better Days – A Mental Health Recovery Workbook', and his personal experience of being bullied. Drawing on his experience and of others he discusses the forms that bullying takes and how bullies bully. He talks about resisting bullying, what he think needs to be done to improve prevention of bullying and of protection against it, and how people who are being bullied should respond. He explains other ways in which people who are being bullied should be helped. He says what action he would like to see by the communities of people living with mental health challenges to help individuals living with mental health challenges deal with bullies. He shares his message about bullying for people living with mental health challenges.

Craig Lewis is a Certified Peer Specialist living in Massachusetts, http://www.betterdaysrecovery.com/. He’s struggled immensely throughout his life, but he’s successfully transformed it into a life of wellness. He talks about his life, career as author of ‘Better Days – A Mental Health Recovery Workbook', and his personal experience of being bullied. Drawing on his experience and of others he discusses the forms that bullying takes and how bullies bully. He talks about resisting bullying, what he think needs to be done to improve prevention of bullying and of protection against it, and how people who are being bullied should respond. He explains other ways in which people who are being bullied should be helped. He says what action he would like to see by the communities of people living with mental health challenges to help individuals living with mental health challenges deal with bullies. He shares his message about bullying for people living with mental health challenges.

Joryn Jenkins is a trial attorney with 36 years of courtroom experience, now in private practice at Open Palm Law, http://openpalmlaw.com/, in Tampa, Florida. She discusses her career and her law firm ‘Open Palm Law’. She explains Collaborative Law and highlights its principles. She talks about the experiences of divorcing couples, their children who are living with persistent disabilities, and their families. She explains the ways in which collaborative divorce works to help manage or overcome the challenges she’s mentioned for mothers, fathers, their children living with persistent disabilities and their families. She says what more she would like to do and to see done to promote collaborative divorce as a positive change for mothers and fathers and for their children who are living with persistent disabilities. She comments on internet radio as an opportunity for family caregivers to discuss their experiences of divorce when a child is living with persistent disability.

Joryn Jenkins is a trial attorney with 36 years of courtroom experience, now in private practice at Open Palm Law, http://openpalmlaw.com/, in Tampa, Florida. She discusses her career and her law firm ‘Open Palm Law’. She explains Collaborative Law and highlights its principles. She talks about the experiences of divorcing couples, their children who are living with persistent disabilities, and their families. She explains the ways in which collaborative divorce works to help manage or overcome the challenges she’s mentioned for mothers, fathers, their children living with persistent disabilities and their families. She says what more she would like to do and to see done to promote collaborative divorce as a positive change for mothers and fathers and for their children who are living with persistent disabilities. She comments on internet radio as an opportunity for family caregivers to discuss their experiences of divorce when a child is living with persistent disability.

Dr. Marcy Darnovsky is Executive Director of the Center for Genetics and Society, http://www.geneticsandsociety.org/. She describes her career and the Center’s work. She explains human gene editing, the ways it could be used for medical treatment and research, and the pros and cons. She explains germline gene modification and the Center’s position on its benefits and risks. She highlights policies on human germline modification in influential countries and identifies the main differences. She explains why the prospect of human germline modification is so controversial. She says how well she thinks North American would-be parents and family caregivers understand human gene editing and human germline modification, what more she would like to see done to improve understanding of human gene editing and human germline modification, and what more governments should do to improve information flows to parents, would-be parents and family caregivers, researchers, and the medical profession.

Dr. Marcy Darnovsky is Executive Director of the Center for Genetics and Society, http://www.geneticsandsociety.org/. She describes her career and the Center’s work. She explains human gene editing, the ways it could be used for medical treatment and research, and the pros and cons. She explains germline gene modification and the Center’s position on its benefits and risks. She highlights policies on human germline modification in influential countries and identifies the main differences. She explains why the prospect of human germline modification is so controversial. She says how well she thinks North American would-be parents and family caregivers understand human gene editing and human germline modification, what more she would like to see done to improve understanding of human gene editing and human germline modification, and what more governments should do to improve information flows to parents, would-be parents and family caregivers, researchers, and the medical profession.

Rob Gain, lawyer, joined Koskie Minsky’s Class Actions group, http://kmlaw.ca/lawyers/?practicearea=57, in 2014 after practicing at another leading class-action law firm. He describes his career and experience as a lawyer especially in class actions, and the work of the Class Actions group. He says what a class action and its stages are. He explains the things that lead to class actions, what these seek to achieve, the decisions expected from the Court, and the possible outcomes and implications. He highlights the broader outcomes of class actions, and the implications and for whom, and out-of-court settlements. He explains what people have to do and decide for themselves if they are interested in launching or joining a class action. He explains what normally happens to the evidence that’s been submitted to the Court once a class action is over. He discusses the influence of class action suits on governments in Canada.

Rob Gain, lawyer, joined Koskie Minsky’s Class Actions group, http://kmlaw.ca/lawyers/?practicearea=57, in 2014 after practicing at another leading class-action law firm. He describes his career and experience as a lawyer especially in class actions, and the work of the Class Actions group. He says what a class action and its stages are. He explains the things that lead to class actions, what these seek to achieve, the decisions expected from the Court, and the possible outcomes and implications. He highlights the broader outcomes of class actions, and the implications and for whom, and out-of-court settlements. He explains what people have to do and decide for themselves if they are interested in launching or joining a class action. He explains what normally happens to the evidence that’s been submitted to the Court once a class action is over. He discusses the influence of class action suits on governments in Canada.

Jane De Pauw lives in Sherwood Park, Alberta, Canada, with her husband and two children who were adopted through the Alberta foster care system. Sylvie Hebert was born in Buckingham, Quebec, Canada. She and her husband started their own family and then set up their own medical foster home. They explain the Adoption Society of Alberta, http://www.adoptionabi.com, and the support it provides for parents who have adopted children. They discuss the experience of adoptive parents. They highlight what they each see as the challenges faced by parents when the children they have adopted have special needs related to mental health disabilities and physical health. They explain the ways the Adoption Society’s support helps overcome the challenges with disabilities such as fetal alcohol spectrum disorder who are living at home and when they also are at school. They say what more they both would like to do and see done to promote the Adoption Society of Alberta.

Jane De Pauw lives in Sherwood Park, Alberta, Canada, with her husband and two children who were adopted through the Alberta foster care system. Sylvie Hebert was born in Buckingham, Quebec, Canada. She and her husband started their own family and then set up their own medical foster home. They explain the Adoption Society of Alberta, http://www.adoptionabi.com, and the support it provides for parents who have adopted children. They discuss the experience of adoptive parents. They highlight what they each see as the challenges faced by parents when the children they have adopted have special needs related to mental health disabilities and physical health. They explain the ways the Adoption Society’s support helps overcome the challenges with disabilities such as fetal alcohol spectrum disorder who are living at home and when they also are at school. They say what more they both would like to do and see done to promote the Adoption Society of Alberta.

Kirk Pion is Vice President of Design & Development for the UnitedHealthcare Innovation Centers of Excellence. Dr. Vidya Raman-Tangella, a physician, heads UnitedHealthcare’s Innovation Center of Excellence. They describe the company, UnitedHealthcare, http://www.uhc.com/, and explain their work in innovation. They discuss issues and challenges experienced in America by caregivers caring for aging or disabled family members, and say why UnitedHealthcare’s Solutions for Caregivers are needed. They explain the ways in which the needs of American caregivers caring for aging or disabled family members' needs are being successfully met by UnitedHealthcare’s Solutions for Caregivers. They discuss gaps that caregivers may be experiencing, their feedback, and what is being learned from caregivers by UnitedHealthcare. They explain where United Healthcare is headed with Solutions for Caregivers, why it should move forward, its other programs, and why it is OK for caregivers to ask for help.

Kirk Pion is Vice President of Design & Development for the UnitedHealthcare Innovation Centers of Excellence. Dr. Vidya Raman-Tangella, a physician, heads UnitedHealthcare’s Innovation Center of Excellence. They describe the company, UnitedHealthcare, http://www.uhc.com/, and explain their work in innovation. They discuss issues and challenges experienced in America by caregivers caring for aging or disabled family members, and say why UnitedHealthcare’s Solutions for Caregivers are needed. They explain the ways in which the needs of American caregivers caring for aging or disabled family members' needs are being successfully met by UnitedHealthcare’s Solutions for Caregivers. They discuss gaps that caregivers may be experiencing, their feedback, and what is being learned from caregivers by UnitedHealthcare. They explain where United Healthcare is headed with Solutions for Caregivers, why it should move forward, its other programs, and why it is OK for caregivers to ask for help.

Mark Courtepatte is co-chair of the Hamilton and Area Parent and Caregiver FASD (Fetal Alcohol Spectrum Disorders) Support Group, http://www.hamiltonfasdsupport.ca/, and one of the organizing members of the Youth and Sibling FASD Support Group. He describes his work, the experiences of FASD that his work has created for him, and the Groups’ support that’s provided to school children, and their families and family caregivers. He discusses the challenges created by FASD for children beginning their lives as school children, changing from children into teenagers, and completing school and moving on to adult life. He explains the ways in which support helps school children, their families and their family caregivers overcome the challenges. He says what more he wants to do and to see done, and by whom, to promote support for elementary and high-school children living with FASD, and for their families and their family caregivers.

Mark Courtepatte is co-chair of the Hamilton and Area Parent and Caregiver FASD (Fetal Alcohol Spectrum Disorders) Support Group, http://www.hamiltonfasdsupport.ca/, and one of the organizing members of the Youth and Sibling FASD Support Group. He describes his work, the experiences of FASD that his work has created for him, and the Groups’ support that’s provided to school children, and their families and family caregivers. He discusses the challenges created by FASD for children beginning their lives as school children, changing from children into teenagers, and completing school and moving on to adult life. He explains the ways in which support helps school children, their families and their family caregivers overcome the challenges. He says what more he wants to do and to see done, and by whom, to promote support for elementary and high-school children living with FASD, and for their families and their family caregivers.