Your Stories: Conquering Cancer

Writer, podcaster, and healthcare advocate Kristin Flanary—or Lady Glaucomflecken as she's known online—first introduced Your Stories host Dr. Mark Lewis to the concept of co-survivorship two years ago. As her husband Will went through two testicular cancer diagnoses and a sudden cardiac arrest, she later realized that she hadn't just supported him through those experiences and challenges—she had shared them with him. For National Family Caregivers Month, Kristin returns to Your Stories to reflect on her discussion with Dr. Lewis, her feelings on co-survivorship, and the importance of showing up for the loved ones of people with cancer.

Professional snowboarder Kimmy Fasani was still breastfeeding her second child when she found a lump under her armpit. Just days later, she was diagnosed with an aggressive form of breast cancer and found herself preparing for chemotherapy. Having lost both her parents to cancer, it was a terrifying moment for her, but she tried not to let her family history loom over her as she began treatment. Instead, she focused on the lessons learned from years spent tackling mountain peaks—to stay flexible and adaptable when her plans were upended and to find beauty in the adventure even if she hadn’t asked for it. “There were so many moments as I was navigating my cancer journey that I was incredibly grateful for every moment that I’d ever spent in the mountains,” Kimmy says. “The mountains teach us so much about adaptability and being flexible and having a plan but having to shift and pivot.”   At the time of her diagnosis, Kimmy and her husband Chris were filming a documentary following five years of their lives and careers. As she faced the challenges of chemotherapy, radiation, and a double mastectomy, she opted to keep the cameras rolling, documenting the highs and lows of her treatment with unflinching honesty. As difficult as it could be to show the world her most vulnerable moments, Kimmy came out on the other side inspired and hopeful that she could remind others like her that they aren’t facing cancer by themselves. “I’m proud that I was able to have the courage to show others what this journey looked like in the most vulnerable, raw and real ways, so hopefully other people don’t feel alone as they are navigating their own journey,” she says. In this episode of Your Stories, Kimmy speaks with host Dr. Mark Lewis about the power of advocating for herself, leaning on loved ones, and looking towards the future.

When Molly Hones was diagnosed with fibrolamellar cancer for the second time in less than two years, she made two critical decisions. First: She wouldn’t focus on the unknowns of her condition and would focus on the positives instead.  Second, she would give back by participating in research. And so, in June 2023, Molly traveled to the Johns Hopkins Hospital, where oncologist and Conquer Cancer grant recipient Marina Baretti, MD, was running a clinical trial for people with fibrolamellar cancer. “I like to say I’m donating my body to science while I’m still alive,” Molly says. “And how cool is it to see my legacy when I’m still around?”  Which is how she found herself in Baltimore, Maryland, on the day she received an unthinkable phone call: Her husband Grant had passed away at age 45 from a brain aneurysm.   Even faced with such devastating news, Molly remained committed to moving forward with her treatment, connecting with other fibrolamellar patients, and celebrating life whenever she could. Being brave and facing challenges with a smile on her face, she says, is her way of honoring the people she’s lost and the people she’s met through her cancer journey.   In this episode of Your Stories, Molly speaks with host Dr. Mark Lewis about her experience with fibrolamellar cancer, the importance of community when facing a rare cancer, and her hopes of contributing to a world where every person with cancer can live life to the fullest. 

As the Soviet Union collapsed in 1991, a teenaged Yelena Y. Janjigian fled with her family from Azerbaijan to California. Little did she—or anyone else—know that when she first stepped off that airplane, she was taking the first of countless steps, ultimately leading her down a path of discovery with the potential to save innumerable lives.  “As an Armenian individual growing up in Azerbaijan, going by my parents’ and my family’s experience, I don’t think I would have had an opportunity to be a physician there,” Dr. Janjigian says. “There was a clear limitation on who got to be a physician, and it’s a prestigious position anywhere in the world. As a relative minority, I wouldn’t have been able to do that. My parents certainly had the courage it took to leave and to come to a foreign country.”  In this episode of Your Stories, Dr. Janjigian speaks with host Dr. Mark Lewis about her journey from Soviet-born refugee to groundbreaking oncologist, along with her vision for a world where a cancer diagnosis isn’t nearly as frightening as it is today. 

These days, there’s no getting around it: In a society that practically lives online, it’s no surprise that two-thirds of people with cancer—and their caregivers—turn to social media to inform their treatment and care decisions.  Perhaps it was inevitable, then, that doctors like thoracic medical oncologist Eric Singhi, MD, would eventually follow suit. After all, what better way to reach and educate patients than by meeting them where they are? And if Dr. Singhi can counteract a little medical misinformation and help people better understand and appreciate the lifesaving impact of science in the process, well, even better.  “When I first began engaging on social media, I was mostly using professional platforms like X (formerly Twitter) and LinkedIn,” Dr. Singhi recalls. As his social media goals grew, however, he gradually expanded to other more personal platforms like TikTok and Instagram. What he found there alarmed him.   “I started seeing all of this misinformation about cancer, especially lung cancer,” he explains. “And it was frustrating. There were people without true medical training ... offering guidance and their thoughts and supplements and all of these things without data or evidence to back it up.”  In a landscape so ripe for misinformation and so impossible to control, Dr. Singhi knew it was impossible to purge or prevent it entirely. “I realized we couldn’t get rid of it,” he says. “What we should do is drown it out with credible experts who do have the training, right?”  And so, that’s exactly what he set out to do.   In this episode of Your Stories, Dr. Singhi—or, as he’s known on various social media platforms, @lungoncdoc—sits down with host Dr. Don Dizon (a social media maven in his own rite) to talk about his mission to make oncology make sense to patients and families, his determination to counter misinformation with genuine knowledge, and how he’s conquering cancer not only through his research, but by building an online community, one post (the occasional dancing doctor video) at a time. 

With a rare exception here and there, most scientists will at least complete a college-level science class before making their first cancer research breakthrough. Heman Bekele, on the other hand, is just wrapping up his sophomore year of high school.  By the time he was named Time Magazine’s Kid of the Year in 2024, Heman was already generating buzz in the scientific community. The year before, he’d won the grand prize in the 2023 3M Young Scientist’s Challenge, in which kids compete to think of the most unique solutions to common problems.   His entry? A soap that could potentially be used to treat skin cancer, inspired by his early childhood years in Ethiopia.    “One of the things that really stood out to me was that a lot of people worked really long hours outside in the sun,” says Heman, who first began developing the idea when he was around 11 years old. Over time, he learned more about skin cancer, its prevalence in low- and middle-income countries, and the lack of awareness and treatments for patients in those countries.   “I wanted to take action within the field of skin cancer and make it more affordable to get treatment,” he explains. From there, Heman began a long, slow, trial-and-error process that ultimately led him to soap as a treatment delivery device. “What is the universal product that everyone uses? I landed on soap, which significantly outweighed every other option.”   In this episode of the Your Stories podcast, Heman discusses the story behind his idea for a soap to treat skin cancer, along with the need for affordable skin cancer treatment and the challenges of finding scientific mentors when you’re still too young to get a driver’s license.

It started—as these stories so often do—with fatigue. At first, Jace Yawnick simply chalked it up to a busy life and a job requiring frequent travel. But then he noticed something: There were times the fatigue kicked in when he hadn’t just gotten off a plane or done anything else particularly strenuous. “Intuitively,” Jace says, “something within me just knew something wasn’t right.”  Then came the coughing and the back pain. It would be months—and more than one misdiagnosis—before doctors found the problem: Hodgkin lymphoma. As he processed the news of his diagnosis, Jace realized something: Facing cancer was not something he wanted to do by himself.    And so, when he started to chronicle his cancer experience online, he was simply looking for catharsis and camaraderie. He got both—along with a community of 700,000-plus followers who’ve followed his entire journey in hopes of seeing the moment he fulfilled a cherished goal: to ring the bell and declare himself cancer-free. In this episode, Jace talks to Your Stories host Dr. Mark Lewis about what it’s like to share your cancer journey with thousands of people, the importance of advocating for yourself, and the role of community when it comes to conquering cancer. 

 The first cancer diagnosis was scary enough.   “I feel like Hollywood actually gets this moment pretty darn right,” Emma says, recalling the day—not long before her 18th birthday—that she learned she had cancer. “The world around you kind of slows down, you get tunnel vision, maybe a little dizzy. The only thing you can really hear is your breathing and your heart rate.”    Eventually—following multiple rounds of chemotherapy—Emma was declared cancer-free. But then came the second diagnosis.   “The key difference between the first and second time is that the first time, you have fear of the unknown. You don't know what's coming for you, and you don’t know what you don’t know,” Emma says. This time, however, she knew all too well. “I did know what was coming for me. I know what I'm going to be facing. And I would argue that that is almost worse. But, if you're gonna relapse, there's only one positive: You know how to do it better this time.”   In this episode of Your Stories, Emma joins her oncologist Molly Taylor, a Conquer Cancer-funded researcher, for a candid discussion about resilience, recovery, and what helped her make a major comeback after facing cancer twice.

Whether you find it on social media, via search engine, or on a popular news website, it often seems like medical misinformation is everywhere, including in the cancer space.   Maybe it’s the claim that sugar causes cancer to spread faster. Maybe it’s someone saying that people with dark skin don’t get skin cancer. Or maybe it’s the conspiracy theory that drug companies and government agencies are withholding the cure for cancer so they can continue to profit from expensive oncology care.   These are just a few examples of purported cancer facts you might encounter online—and none of them are true.  From misinterpreted oncology research to race-related stigmas and myths, the spread of cancer-related misinformation runs rampant, taking an increasing toll on global health and often hampering our efforts at early detection and prevention. In one 2022 study, researchers found harmful misinformation in approximately 32.5 percent of the cancer-related English-language publications they analyzed.  “Unfortunately, what we're frequently seeing in online networks is that the worst-quality information actually receives more engagement than the high-quality information,” says one of the study’s lead authors, Dr. Stacy Loeb, a Conquer Cancer recipient whose spent years researching the consequences of misinformation for patient health. “The structure of online networks can lead to much more rapid and widespread misinformation than we ever would have seen in the past.”  In this episode of Your Stories, Dr. Loeb joins ASCO’s Sybil Green to discuss the rise of misinformation online, its impact on the cancer landscape, and how people across the cancer community can help to turn the tide. 

While his teenage classmates were getting ready for school, then-13-year-old Sean Swarner was watching the water rise in the shower, his hair clogging the drain. His first cancer diagnosis—and the subsequent treatment regimen—took an immense toll on his self-image and well-being. That morning in the shower, he remembers, all of the fear and despair overcame him: Sean collapsed to his knees, tears and tap water streaming down his face. “I remember looking at myself in the mirror,” he recalls, “and I couldn’t even recognize who was looking back.” After a year of treatment, Sean reached remission. But then, two years later—during a follow-up with his oncologist—Sean and his parents received shocking news. His doctor had found a second cancer: an Askin sarcoma, a rare and aggressive tumor in his chest that eventually left him with only one functioning lung. Worse still, Sean’s chances of survival appeared slim. In the years to follow, Sean became the first cancer survivor to summit Mount Everest, before eventually completing each of the world’s Seven Summits (the highest mountains on each of the seven continents). That includes three attempts on Mount Denali, the tallest mountain in North America and one of the world’s most dangerous—ultimately reaching the summit in 2017. “In my mind,” Sean recalls, “I kind of jokingly thought to myself, ‘If this fool who’s had two cancers and has one lung can climb to the top of the world, that might inspire some people.’” In this episode of Your Stories, Sean joins host Dr. Mark Lewis to discuss how conquering cancer shaped his life and set him on a course to complete some of the world’s most prized adventuring achievements. He also talks candidly about the motivations behind these achievements and his hope that others will look at his accomplishments and take away a simple message: If a guy with one lung can do it, so can you.

For patients with cancer, the holiday season can be particularly difficult: How is anyone supposed to prioritize self-care and recovery at a time when much of the world is going on about the joys of giving? As a breast cancer survivor and a career fashion and beauty publicist, Melissa Berry is all too familiar with that challenge, along with the massive toll cancer can have on a person’s self-image. Enter Cancer Fashionista, a platform she’s built to help patients and survivors navigate cancer without sacrificing their self-confidence, self-worth, and self-empowerment. In this episode of Your Stories, Melissa shares her story—including how she turned her cancer journey into a brand and a platform that reaches thousands of patients and survivors every day.

Caitlin Murray has mastered turning life’s setbacks into something that brings joy to the 1.5 million people around the world who follow her Instagram page. When her 3-year-old son, Calum, was diagnosed with leukemia in 2016, Caitlin and her family’s lives were quickly filled with doctor visits, grueling treatments, and endless uncertainty. Soon after Calum’s devastating diagnosis, Caitlin launched her blog, Big Time Adulting, to help keep her family informed and to cope with the challenges of parenting a child with cancer. However, Caitlin’s unique style of humor ultimately amassed an enormous audience. Today, with Calum in remission, Big Time Adulting serves as a multimedia outlet where Caitlin writes and shares about life, love, parenting, and the many ups and downs along the way. In this episode of the Your Stories podcast, Caitlin discusses how maintaining a sense of humor can be a powerful antidote to the unforeseen obstacles that life can bring. She also reflects on the impact of practicing gratitude, including why it matters to raise support for cancer research.

Every 14 seconds, someone is diagnosed with breast cancer, making it one of the most frequently diagnosed cancers in the world, second only to lung cancer, and the leading cause of cancer-related death among women globally. And, while a cancer diagnosis can be devastating for anyone of any age or gender, one group faces a particularly unique and complex set of challenges: young working mothers. It’s a reality that Irish patient Aisling O’Brien knows all too well. Aisling spent most of 2023 undergoing numerous rounds of treatment—including breast-conserving surgery right before the winter holidays—all while parenting three young children. “I'm slowly getting back to what is now my new normal,” says Aisling, now that she’s through treatment and cancer-free. “It's given me a lot of perspective. I don't sweat the small stuff. I don't get nervous about things anymore, because what's the worst that could happen?  It's shown me that I have a strength that I never knew I had.” It helped that Aisling had a medical oncologist who was there to support her and her family every step of the way: Dr. Michaela Higgins. A two-time Conquer Cancer grant recipient based at St. Vincent’s University Hospital in Dublin, Ireland, Dr. Higgins has led numerous clinical trials for patients with breast cancer, helping to advance new treatments and cures. In this Your Stories episode, Aisling and Dr. Higgins join host Dr. Mark Lewis for a conversation about the many challenges that come with balancing motherhood and breast cancer, along with the promising future of breast cancer research and care.

Prom. Graduation. College. These are just a few rites of passage that high school seniors everywhere look forward to. But for Auburn, a devastating turn of events tilted her entire world off its axis and put all her senior year plans on hold. At just 18 years old, she was diagnosed with Hodgkin lymphoma, a type of blood cancer. Instead of graduating with her classmates and going to senior prom, Auburn endured numerous rounds of lymphoma treatment, which is notorious for being incredibly taxing, especially for younger patients. Fortunately, one of Auburn’s providers, Dr. Raymond Mailhot, is uniquely qualified to help patients find the best and least traumatic course of care. A two-time Conquer Cancer-funded award recipient, Dr. Mailhot focuses on improving radiation oncology for younger patients in the U.S. and in Latin American countries. With his Conquer Cancer funding, he’s determined to improve radiation treatment options for pediatric patients—research that has helped inform his approach to Auburn’s care. In this Your Stories episode, Auburn and Dr. Mailhot have a heartfelt exchange about the many difficulties that cancer brings, especially for younger patients. Together, they reflect on Dr. Mailhot’s thoughtful approach to providing care for Auburn and the ways that Auburn has persevered to carve a promising path for her life.

Gabriele “Gabe” Grunewald was a professional distance runner and a relentless optimist. She competed in Big Ten Championship races, became an NCAA track and field All-American athlete, and finished 4th in the 2012 U.S. Olympic Trials. Such accomplishments become even more impressive when you learn that—even as she racked up accolades and wins—Gabe also faced cancer numerous times. In 2009, Gabe was diagnosed with a rare type of cancer called adenoid cystic carcinoma (ACC). Then, in 2010, she was diagnosed with thyroid cancer. Despite these circumstances, Gabe persevered, continuing to train and run professionally. She also became a rare cancer advocate, launching the Brave Like Gabe Foundation to encourage other patients and survivors to embrace their own courage and chase their dreams. In June 2019, after a decade of living with ACC, Gabe passed away at her home in Minneapolis surrounded by loved ones—including her husband, Dr. Justin Grunewald. An ultra-marathon runner himself, Dr. Grunewald is also an internal medicine specialist and chair of the Brave Like Gabe Foundation’s Rare Cancer Research Working Group. He joins the Your Stories podcast to share more about Gabe’s story and legacy, along with the importance of supporting rare cancer research so that patients with these rare diseases have more hope for better outcomes.

Whether you’re relaxing on the beach, taking a hike in nature, or hitting your favorite water park, we’ve heard it time and time again: Excess sun exposure increases the risk of skin cancer, so protect your skin and apply your sunscreen. Of course, while some skin cancer risk factors are unavoidable, we all know there are proactive, preventive steps we can take—like applying sunscreen and limiting sun exposure—to decrease our risk. But what if you could do something that not only protects yourself from skin cancer, but also people around the world? Although numerous milestones have been made in skin cancer research and treatment, there remains significant room for improvement when it comes to treatment and care. Dr. Lynn Schuchter is director of the Tara Miller Melanoma Center at Penn Medicine and a former president of the American Society of Clinical Oncology, or ASCO, for short. Having dedicated her career to caring for patients with skin cancers, Dr. Schuchter knows all too well how much progress still needs to be made in the field of skin cancer research and care. Today, Dr. Schuchter joins the Your Stories podcast to talk about the importance of prevention, patient-centered care, and the past, present, and future of skin cancer research and treatment.

For Dr. Kekoa Taparra, cancer is deeply personal. Growing up in a remote area of Oahu, Hawaii, Dr. Taparra witnessed his younger cousin’s struggles with neuroblastoma. He watched his mother lift and carry his aunt, too weak to walk because of breast cancer. He heard the sharp cries of another aunt suffering with endometrial cancer. These early experiences drove Dr. Taparra to not only dedicate his career to oncology and cancer research, but to focus on addressing the various inequities that face Native Hawaiian and Other Pacific Islander (NHPI) communities—from low rates of inclusion in clinical trials to geographic barriers to cancer care. In 2023, Dr. Taparra received the inaugural Dr. Judith and Alan Kaur Endowed Young Investigator Award through Conquer Cancer, the ASCO Foundation. With this support, he launched a research project that uses machine learning to explore the various drivers of NHPI cancer disparities and helps categorize NHPI cancer data more effectively. He joins Your Stories host Dr. Don Dizon to share more about this important work and how his upbringing fueled his dedication to conquering cancer for every patient.

Not only does cancer predate the practice of medicine, but it may also predate the human species entirely. In 2016, archeologists in South Africa unearthed a large 1.7 million years-old bone fragment, ultimately revealed to be the toe bone of an ancient but unknown species of human dating back millennia. On that piece of bone, they discovered something else: a malignant tumor. It’s a stark reminder that, for as long as their profession has existed, oncologists have been studying and treating cancer. For many, it raises a frustrating question: After so many centuries of studying cancer, why haven’t we cured it yet? The answer is complicated. Dr. Otis Brawley joins the Your Stories podcast to help us better understand what makes cancer such a complex and persistent adversary. In addition to being a professor of oncology at the Johns Hopkins University and a former chief medical and scientific officer of the American Cancer Society, Dr. Brawley is a member of Conquer Cancer’s Board of Directors and editor of The Cancer History Project, a free online resource dedicated to documenting the history of cancer in medicine. He talks with host Dr. Mark Lewis about why cancer has not yet been “cured” and about how our study and understanding of it has evolved over time.

What do esophageal cancer, testicular cancer, lung cancer, cervical cancer, and colon cancer have in common? Each carries some type of stigma or taboo—whether because they’re linked to behavioral causes or because they affect portions of the anatomy traditionally deemed private. The impact of these stigmas can be detrimental: In some cases, stigmatized cancers receive less research funding, resulting in fewer treatment innovations for patients. Moreover, stigmas often result in patients hesitating to seek critical diagnostic care, increasing the risk that their cancer won’t be caught until it’s too late. April is National Cancer Control Month, which aims to cut the U.S. cancer death rate in half by 2028. Although better cancer screening is a vital step toward that goal, many people do not get screened—a structural problem made worse by cancer stigmatization. In this episode of the Your Stories podcast, we’re joined by Dr. Stacy Wentworth, an award-winning oncologist and cancer survivorship expert. As medical director of cancer survivorship at Atrium Wake Forest Baptist Health Comprehensive Cancer Center, she has two decades of experience with leading patient-centered care teams in diverse settings. Dr. Wentworth is also the founder of her weekly Substack, Cancer Culture. In this forum, she explores how personal, scientific, and sociocultural factors shape attitudes toward cancer, including the various stigmas and difficult conversations that may come with it.

Imagine receiving a cancer diagnosis, only to immediately learn that not only has it spread to other parts of your body, but it’s also incredibly rare for it do so—so rare, in fact, that little to no research exists to inform your treatment. Katie Coleman doesn’t need to imagine this: She’s lived it. In December 2020, at just 29 years old, Katie was diagnosed with metastatic oncocytoma, a type of kidney cancer so rare that fewer than 10 cases have been recorded in history. Consequently, it’s also remained largely understudied, underfunded, and overlooked in cancer research. Luckily, Katie found Dr. Pavlos Msaouel, an oncologist and a three-time Conquer Cancer grant and award recipient with an incredibly niche research focus: targeting rare kidney tumors. Despite a lack of research about Katie’s specific type of tumor, Dr. Msaouel’s experience with targeting rare kidney tumors—informed by his Conquer Cancer-funded research—enabled her care team to hone in on an approach that ultimately left her cancer-free. Now a cancer survivor and patient advocate, Katie has made it her mission to share her story and help others learn to more effectively navigate cancer care. In this episode of Your Stories, Katie speaks with podcast host and fellow survivor Brenda Brody about what she found most helpful during her cancer experience and the empowering impact of shared decision-making between providers and patients.