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Here in Holland Story#5 Blogger's Battle
  • 16/05/2017
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Here in Holland Story#5 Blogger's Battle

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Descripción de Here in Holland Story#5 Blogger's Battle

This podcast features a story about the desire to have kids and the fear of losing them. Australian blogger Stephanie Ernst was struck by an incredibly rare disease which strikes identical twins. The podcast highlights her struggle with the disease Twin to Twin Transfusion Syndrome – TTTS – and its closely associated variant TAPS – Twin Anemia Polycythemia Sequence. It features Dr. Enrico Lopriore head of the department of Neonatology at the Leiden University Medical Centre. TAPS was discovered by the team at the Leiden hospital.

For more information on TTTS and TAPS visit the TTTS Foundation

Or the TTTS Grief support group
TTTS Grief support group

Stephanie’s blog is

The Inbuggering Diaries


Contact
Here in Holland
email: hereinholland@gmail.com
Facebook page
WhatsApp +31 (0) 6 12 42 83 87
Twitter: @HereHolland.

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podcast NETHERLANDS leiden twins holland taps expats ttts Stephanie Ernst Leiden University Medical Cent Enrico Lopriore Twin to twin transfusion syndr twin anemia polycythemia seque expats in Netherlands

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